I was diagnosed with fibromyalgia in the mid "90's a year or 2 after a car accident with spiral acceleration force vectors. My 5 children were all in the accident, and had similar symptoms. We spent 10's of thousands of $$ on chiropractic, PT, neuropsychoimmunology, trigger point therapy, clinical psychology, biofeedback--and through the entire process, I felt my doctors were consistently trying to dismiss the physical damage to my body and brain in the MVA as the cause of my pain, trying to give me drugs for something I didn't have that they knew how to treat, instead of acknowledging the impotence of their diagnostic and treatment scope to accurately assess what was happening n my body. I am an OT trained in neurodevelopmental work, and one day in the midst of all this I tried to log roll down a hill with my children, and became violently nausesous, which was not normal for me, and I wondered what had changed in my neurological organization to precipitate such an event; I had dreams about playing counterpoint on the piano, and then discovered that I could no longer play Bach Inventions I knew by heart, and that I couldn't french braid my daughter's hair. I consulted with a NDT practitioner in Seattle, and after about a month on a 20 minute a day movement program that targeted injured neurological patterns in the pons and midbrain primarily, my pain was gone and function restored. That was more than 30 years ago.
Fibromyalgia is frequently mischaracterised as a condition with no biological basis, yet a large body of research demonstrates clear and reproducible abnormalities across the central nervous system, peripheral nerves, immune signalling and molecular pathways. It is accurate to say that there is no single, SIMPLE diagnostic test available in routine clinical practice, HOWEVER this is very different from saying that there are no biomarkers at all.
Functional MRI and PET studies repeatedly show heightened activation in the insula, anterior cingulate cortex and somatosensory regions in response to mild stimuli, along with reduced activity in descending inhibitory pathways. These findings reflect central sensitisation rather than an absence of objective abnormalities. PET imaging has also revealed increased binding of glial activation markers, indicating neuroinflammation in pain‑processing regions. Cerebrospinal fluid studies have shown elevated levels of substance P and altered concentrations of glutamate and other neurotransmitters involved in nociception. Molecular research has identified distinct cytokine patterns and immune signatures, including increased IL‑6 and IL‑8 in many patients, and multi‑omics studies have demonstrated characteristic metabolic and transcriptomic profiles. Gene expression work has produced diagnostic models based on markers such as DYRK3, RGS17 and ARHGEF37, which can distinguish fibromyalgia from healthy controls with strong accuracy. Peripheral evidence is equally compelling. A substantial proportion of patients show reduced intraepidermal nerve fibre density on skin biopsy, consistent with small‑fibre pathology, and autonomic testing often reveals measurable abnormalities in heart‑rate variability, baroreflex sensitivity and orthostatic responses. These findings demonstrate that fibromyalgia has multiple biological signatures, although they are not yet consolidated into a single test suitable for everyday clinical settings.
The claim that fibromyalgia is diagnosed solely on subjective reports or that the brain becomes overwhelmed and shuts off signals is also contradicted by current evidence. People with fibromyalgia often struggle to pinpoint the source of their pain because the nervous system becomes hyperresponsive and poorly regulated. Instead of shutting down, the brain amplifies and misprocesses sensory input, producing noisy, exaggerated and poorly differentiated signals that are difficult to localise.
Neuroimaging studies show that the sensory cortex becomes less precise in mapping incoming information, and quantitative sensory testing demonstrates lowered pain thresholds and abnormal temporal summation.
This explains why pain feels widespread, shifting and hard to map. The idea that pain in fibromyalgia represents a symbolic choice of the body to avoid numbness has no support in neuroscience. The pain arises from altered neurophysiology involving central sensitisation, impaired inhibitory control, neuroinflammatory activity and peripheral sensory abnormalities. Far from being a condition defined only by subjective experience, fibromyalgia is increasingly understood as a complex, multisystem disorder with measurable biological underpinnings that current clinical tools are only beginning to capture. It is very sad.
Thank you!! This is the best information yet on this debilitating condition with the diagnostics that you have mentioned above. I’ve suffered this fybromyalgia pain for many years. I have so many anvils it’s hard to say which came first to deliver me with a constant diet of pain throughout my body since an early age. I also suffer from trigeminal neuralgia from hits to my head (asthma, allergies and am classed by the allergist as a “super-sensitive, I believe people like me are barometers for everyone else). My daughter has TG since a car accident where her head was thrown back and forth and sideways with no external injury to see. I appreciate Unbekoming’s take on it all, I always do, but to own the traumas and the consequent pain is not my issue at all - I do - I just cannot take this simple explanation on board entirely. As to Lyrica, I would never take such a terrible drug after taking Endep prescribed to me by my doc at the time as a painkiller. Oh boy! After taking it and feeling worse I weaned myself off it and boom, the pain was exaggerated more than I’d ever had. Anti inflammatory meds are useless and gut destroying, but wait, you can have another drug for that and not absorb Magnesium, beneficial in this area for muscular problems. It’s just so damned wicked. So, meditation, self hypnosis, a good bloody clean out, and light exercise (something I did too much of and not light enough) will work wonders. That and something that relaxes you. Continual stress and trauma exacerbates the condition, I know too well. So, what is the cure and is there a cure at all once the pain is acknowledged and the numbness has abated leaving the pain in place?
I found this a very mixed-up article, very obviously written by someone with no experience of diffuse all-over body pain, inability to move as no matter how much you try, your muscles will not work, severe fatigue and insomnia; and heavily reliant on whatever Dr Tom Cowan says. I don't know who his patients are, but I know a few people with fibromyalgia (myself included) and they don't speak in the third-person as you say his patients do.
Yes, trauma is a root cause, as it is for many diseases and conditions.
I, and many others, have found magnesium supplementation helpful.
At my worst, I'm certain I could have fit the description for Fibromyalgia. After seriously addressing electromagnetic exposures, something I would have laughed at earlier in life, the debilitating whole body pain vanished completely--has never returned.
And a whole lot of us were handed that diagnosis just to shut us up after passing a few tests.
I have since learned that insurance started bitching at the doctors for testing.
And some of us go into doctors screaming our story and are not listened to. Adds a LOT more stress and frustration to it all. I TRIED to tell them actual symptoms, and they WOULD NOT LISTEN.
Argh!!
I have learned things that help me, things that don't, I have learned there are real things going on with me, not some amorphous trash can diagnosis to shut me up. And the doctors still are not helpful. It's not stuff you can hand me a prescription for in a 10 minute appointment. And when I DO want help from the medical profession "You have no diagnosis that would justify what you are asking for." Well, no, I don't, because no one will listen long enough to make a valid diagnosis.
I do things on my own now. And wish I could get insurance to pay for any of it. They pay for half the bill for my chiropractor appointments. That's it. I'm permanently disabled, and because I can't get a doctor to listen, I get no help on anything else I do.
Drugs fix nothing. There is always a root cause for any disease. However, the entire medical mafia is constructed around the existence of viruses and germ theory. And that is why the country is so ill despite all the "wonderful" medical advances. Doctors are not trained to discover root causes...they are trained to dish out tests and drugs.
I have a sister (67) who was 'diagnosed' with fibromyalgia a number of years ago and indeed in her case the focus is mainly on symptom suppression, and not so much on her OWN story, not on the understanding and recognition of where it all comes from. But based on what she has told me over the years, I notice that intuitively she does not completely ignore the psychological aspects. She doesn't really refer to a specific trauma event in her past, but rather describes how it all became too much for her. I will send her this article and because I know that she has never delved deeply into the true nature of how big pharma functions and how doctors are trained, etc., I will provide some additional information in addition to this article. I will also translate the article into our language Dutch, because certain terminalogies are quite difficult.
Furthermore, I find it a real relief that Cowan [and Barbara O'Neil] mention certain actual causes, such as EMF, synthetic clothing, etc. Usually these disease makers are completely ignored in the mainstream. For example, naming EMF, as everyone will understand, is nowadays very sensitive as a true pathogen, because this is also a consequence of an overall digitalization of our living environment and because so much has been invested in it and is also seen as the holy grail by the current technocracy, people would rather that EMF remain buried as a pathogen.
I completely disagree with this . Not sure what patients did doctor cowan speak with but when i went to my doctor with endless back pains , muskoskeletal pain and migraines. I did physiotherapy, psychotherapy and none if it helped. Its true that the cause can be psychosomatic this disease is not. After eliminating all causes of pain we landed in Fibromyalgia. We don’t just go to doctors self diagnosed. Also quoting Barbara neil? The pseudoscience practitioner? Really? None of her scientific theories have proven.
Try the Emotion Code by Dr. Bradley Nelson. It takes a little bit of practice and you must have a good connection with your intuition or with someone who does. I used it on myself and got rid of lifelong knee pain and pain in both shoulders. It is available on Amazon. Being close minded doesn't help.
Nice! Rocking it as always! I loved the part about the huge fines from the FDA - the price of doing business. And then those in government head over and work for industry, making millions. Oftentimes as do-nothing "consultants". https://doctorschierling.com/blog/yippy-eye-aye-ghost-writers-in-the-skyyyy. This also happens to be the story where I learned about how many biomedical studies are completely ghostwritten, by non-scientists using completely made up data.
I find this article quite infuriating. After extensive tests to rule out everything else I was given a diagnosis of "probably fibromyalgia" approx 10 years ago. I was told it was psychosomatic, all in my head, so not real pain. I was prodded for an emotional event that set it off, none could be found. I was offered pain killers and antidepressants. A total insult to my mental health and every GP visit since a prescription of antidepressants are dangled over me. I take minimal pain relief.
Don’t tell me there is no pain in the night while I’m sleeping when the pain wakes me regularly. Don’t tell me there is no pain when I can physically feel the heat in those pain points in my legs and my inflammatory markers are off the charts. Don’t tell me it’s all in my head when I walk down the stairs sideways in the morning; and don’t tell me you can’t hear the clicking sounds I make when doing that. You have to be a blind Freddy not to see me unpeel myself after sitting for a while, I need to stretch out my joints to stand straight. Articulate by nature and history it’s a running joke in my family about how I mix up words, they call it my “Fibromygina Brain”.
I’m not wedded to any disease narrative; I fight chronic pain daily and never know which or how many parts of my buttocks or legs are going to hurt, so I’m likely to just say “my body hurts”, what has that got to do with my tooth not hurting? My view is that Cowan has no idea what he is talking about with fibromyalgia; he has approached his exploration of the topic with a predetermined result in mind. Promoting his findings is just continuing the myth I deal with every day.
I think (my) Fibromyalgia is chemical in nature, if you have ever had shin splints then you begin to understand the type of pain that attacks my joints and frequently turns into bursitis and tendonitis.
This question is not about fibromyalgia but about chronic pain following an injury. Why don't pain relievers, by blocking the pain, allow you to break the pain pattern?
And as for disease labels, I don't believe in them. I was diagnosed chronic fatigue syndrome (and MCS and other things) for years and actually had mold illness. Detoxed from mold and fully recovered. Many people with CFIDS actually turn out to have lyme or mold illness. It's a diagnosis that just means "you have something but we don't know what it is." The problem is that we don't have good diagnostic tests for many of the things that ail us.
NEW ARTICLE: IVERMECTIN and FIBROMYALGIA Testimonial - Five days into an unprecedented way of treating a severely debilitating disease. A little Christmas miracle
A patient came to me before Christmas with a very severe case of Fibromyalgia.
I suggested a special "trial"
Ivermectin 24mg once a day for 3-4 weeks.
Here are the first 5 days. I suggest reading the patient's entire testimonial but here is an excerpt:
"Dr. Makis, today I sat and cried. I think it's helping!!!!
Yesterday, I was able to go from 8 Tramadol to 5. Today, thus far, I've only taken two. We can't think of another day, in likely a decade, when I've only taken two Tramadol.
I also haven't used any Oxycodone (5mg) since I started this trial. I'm currently on day 5.
Day one, I immediately saw an improvement of the debilitating fatigue, but assumed it was placebo.
Day 2, the same thing happened.
By day 3, it happened again, but I realized it wasn't just the severe fatigue diminishing, it was a noticeable improvement in the also severe brain fog. It was like a haze was lifted from over my eyes.
It was then that I realized that the feeling of electricity coursing through my veins was also significantly improved-at least during the day.
It was still present at night, but again, not so badly that I had to resort to extra Tramadol or Oxy.
In fact, the most Tramadol I have taken since starting this was 7 and it's decreased each day.
As I write this, I'm crying again.
It's extremely difficult to believe this may actually help."
====
Some testimonials really do speak for themselves, and I share this one with you with tremendous joy.
Treating Fibromyalgia with Ivermectin 24mg once daily for 2-4 weeks.
Why am I sharing this “first 5 days testimonial”?
Because it may help someone who is suffering and feeling hopeless.
And because it’s incredibly, beautifully detailed.
I’m being attacked a great deal lately on Twitter or
@X
. Some of you may have seen it.
I suspect Alberta Health Services @AHS_Media has paid new people to attack me in the past week or two. Alberta taxpayer dollars at work, as usual.
It’s strange to say, but I genuinely believe there are many in our government and healthcare system who don’t want patients to get better. They want people to stay sick.
Alberta Premier @ABDanielleSmith has been very pro "Big Pharma" for her entire term in office (protecting contaminated COVID-19 Vaccines for example), which may be why doctors like myself are being treated so horribly and attacked so viciously in Alberta.
But the testimonials will keep coming…😃
The Alberta government may hate me but patients from around the world have my back. And I have theirs.
Corrupt politicians come and go.
But I'm here to make a difference in people's lives.
All pain has an emotional component, how can it not. The "Myalgias" came around to my familiarity in the 90s and was a additional component of Myofascial Pain Syndrome, we treated it the same way, with manual therapy. Kennedys back doc Janet Travel and the first man in space, David Simons, wrote the definitive text on the identification and treatment. Anyone suffering with this condition should find the 2 volumes online and study to empower yourself.
"MusculoSkeletal Amnesia", my concoction of over 35 years ago, contains the recipe to treat soft tissue weakness and discomfort. No, I dont diagnose but I do notice and help people that want help; Many dont want help as they have grown to own their pain, not shed it. Dont bother to look for this as its not important and I never wrote about it, I just used it to help others.
Opioids and other "elixirs" can be helpful especially if one needs to do physical stuff. Many dont share their treatment paths for fear of shaming( its real) and just try to get through the day and do their ADLs(activities of daily living). MEN technology and botanical medicine can also be helpful but allopathic docs wont know anything about these alternatives unfortunately.
Exercise and stretching are the strongest tools but smart bodywork is the key component......there is no substitute to human touch! But how does one exercise when your skin feels like it has broken glass under it and your wrapped in barbed wire? Smart bodywork is the path!!!! I know as I developed a plan to treat the "amnesia" since I have stuff.
It must work as I was attacked by the licensure board when applying and shared my methodology. This is the system we live under, but we persevere!
I was diagnosed with fibromyalgia in the mid "90's a year or 2 after a car accident with spiral acceleration force vectors. My 5 children were all in the accident, and had similar symptoms. We spent 10's of thousands of $$ on chiropractic, PT, neuropsychoimmunology, trigger point therapy, clinical psychology, biofeedback--and through the entire process, I felt my doctors were consistently trying to dismiss the physical damage to my body and brain in the MVA as the cause of my pain, trying to give me drugs for something I didn't have that they knew how to treat, instead of acknowledging the impotence of their diagnostic and treatment scope to accurately assess what was happening n my body. I am an OT trained in neurodevelopmental work, and one day in the midst of all this I tried to log roll down a hill with my children, and became violently nausesous, which was not normal for me, and I wondered what had changed in my neurological organization to precipitate such an event; I had dreams about playing counterpoint on the piano, and then discovered that I could no longer play Bach Inventions I knew by heart, and that I couldn't french braid my daughter's hair. I consulted with a NDT practitioner in Seattle, and after about a month on a 20 minute a day movement program that targeted injured neurological patterns in the pons and midbrain primarily, my pain was gone and function restored. That was more than 30 years ago.
Following to see the answer!
Wow, how do I find a practitioner like that? What would I look for?
Fibromyalgia is frequently mischaracterised as a condition with no biological basis, yet a large body of research demonstrates clear and reproducible abnormalities across the central nervous system, peripheral nerves, immune signalling and molecular pathways. It is accurate to say that there is no single, SIMPLE diagnostic test available in routine clinical practice, HOWEVER this is very different from saying that there are no biomarkers at all.
Functional MRI and PET studies repeatedly show heightened activation in the insula, anterior cingulate cortex and somatosensory regions in response to mild stimuli, along with reduced activity in descending inhibitory pathways. These findings reflect central sensitisation rather than an absence of objective abnormalities. PET imaging has also revealed increased binding of glial activation markers, indicating neuroinflammation in pain‑processing regions. Cerebrospinal fluid studies have shown elevated levels of substance P and altered concentrations of glutamate and other neurotransmitters involved in nociception. Molecular research has identified distinct cytokine patterns and immune signatures, including increased IL‑6 and IL‑8 in many patients, and multi‑omics studies have demonstrated characteristic metabolic and transcriptomic profiles. Gene expression work has produced diagnostic models based on markers such as DYRK3, RGS17 and ARHGEF37, which can distinguish fibromyalgia from healthy controls with strong accuracy. Peripheral evidence is equally compelling. A substantial proportion of patients show reduced intraepidermal nerve fibre density on skin biopsy, consistent with small‑fibre pathology, and autonomic testing often reveals measurable abnormalities in heart‑rate variability, baroreflex sensitivity and orthostatic responses. These findings demonstrate that fibromyalgia has multiple biological signatures, although they are not yet consolidated into a single test suitable for everyday clinical settings.
The claim that fibromyalgia is diagnosed solely on subjective reports or that the brain becomes overwhelmed and shuts off signals is also contradicted by current evidence. People with fibromyalgia often struggle to pinpoint the source of their pain because the nervous system becomes hyperresponsive and poorly regulated. Instead of shutting down, the brain amplifies and misprocesses sensory input, producing noisy, exaggerated and poorly differentiated signals that are difficult to localise.
Neuroimaging studies show that the sensory cortex becomes less precise in mapping incoming information, and quantitative sensory testing demonstrates lowered pain thresholds and abnormal temporal summation.
This explains why pain feels widespread, shifting and hard to map. The idea that pain in fibromyalgia represents a symbolic choice of the body to avoid numbness has no support in neuroscience. The pain arises from altered neurophysiology involving central sensitisation, impaired inhibitory control, neuroinflammatory activity and peripheral sensory abnormalities. Far from being a condition defined only by subjective experience, fibromyalgia is increasingly understood as a complex, multisystem disorder with measurable biological underpinnings that current clinical tools are only beginning to capture. It is very sad.
Thank you!! This is the best information yet on this debilitating condition with the diagnostics that you have mentioned above. I’ve suffered this fybromyalgia pain for many years. I have so many anvils it’s hard to say which came first to deliver me with a constant diet of pain throughout my body since an early age. I also suffer from trigeminal neuralgia from hits to my head (asthma, allergies and am classed by the allergist as a “super-sensitive, I believe people like me are barometers for everyone else). My daughter has TG since a car accident where her head was thrown back and forth and sideways with no external injury to see. I appreciate Unbekoming’s take on it all, I always do, but to own the traumas and the consequent pain is not my issue at all - I do - I just cannot take this simple explanation on board entirely. As to Lyrica, I would never take such a terrible drug after taking Endep prescribed to me by my doc at the time as a painkiller. Oh boy! After taking it and feeling worse I weaned myself off it and boom, the pain was exaggerated more than I’d ever had. Anti inflammatory meds are useless and gut destroying, but wait, you can have another drug for that and not absorb Magnesium, beneficial in this area for muscular problems. It’s just so damned wicked. So, meditation, self hypnosis, a good bloody clean out, and light exercise (something I did too much of and not light enough) will work wonders. That and something that relaxes you. Continual stress and trauma exacerbates the condition, I know too well. So, what is the cure and is there a cure at all once the pain is acknowledged and the numbness has abated leaving the pain in place?
The world is suffering from an unstoppable epidemic of Rockefelleritis, it would seem:).
I found this a very mixed-up article, very obviously written by someone with no experience of diffuse all-over body pain, inability to move as no matter how much you try, your muscles will not work, severe fatigue and insomnia; and heavily reliant on whatever Dr Tom Cowan says. I don't know who his patients are, but I know a few people with fibromyalgia (myself included) and they don't speak in the third-person as you say his patients do.
Yes, trauma is a root cause, as it is for many diseases and conditions.
I, and many others, have found magnesium supplementation helpful.
I agree. I have never used the third person. No clue who he talks to.
The body does give signals when something is wrong. Sometimes it just takes a while for science to catch up.
Hello, I sent one of these articles to our friend this weekend, Endometriosis PCOS, Fibromyalgia article.
At my worst, I'm certain I could have fit the description for Fibromyalgia. After seriously addressing electromagnetic exposures, something I would have laughed at earlier in life, the debilitating whole body pain vanished completely--has never returned.
And a whole lot of us were handed that diagnosis just to shut us up after passing a few tests.
I have since learned that insurance started bitching at the doctors for testing.
And some of us go into doctors screaming our story and are not listened to. Adds a LOT more stress and frustration to it all. I TRIED to tell them actual symptoms, and they WOULD NOT LISTEN.
Argh!!
I have learned things that help me, things that don't, I have learned there are real things going on with me, not some amorphous trash can diagnosis to shut me up. And the doctors still are not helpful. It's not stuff you can hand me a prescription for in a 10 minute appointment. And when I DO want help from the medical profession "You have no diagnosis that would justify what you are asking for." Well, no, I don't, because no one will listen long enough to make a valid diagnosis.
I do things on my own now. And wish I could get insurance to pay for any of it. They pay for half the bill for my chiropractor appointments. That's it. I'm permanently disabled, and because I can't get a doctor to listen, I get no help on anything else I do.
The system is broken. And it breaks people.
Drugs fix nothing. There is always a root cause for any disease. However, the entire medical mafia is constructed around the existence of viruses and germ theory. And that is why the country is so ill despite all the "wonderful" medical advances. Doctors are not trained to discover root causes...they are trained to dish out tests and drugs.
One of the most interesting posts I've read this year.
What an enlightening article! Great!
I have a sister (67) who was 'diagnosed' with fibromyalgia a number of years ago and indeed in her case the focus is mainly on symptom suppression, and not so much on her OWN story, not on the understanding and recognition of where it all comes from. But based on what she has told me over the years, I notice that intuitively she does not completely ignore the psychological aspects. She doesn't really refer to a specific trauma event in her past, but rather describes how it all became too much for her. I will send her this article and because I know that she has never delved deeply into the true nature of how big pharma functions and how doctors are trained, etc., I will provide some additional information in addition to this article. I will also translate the article into our language Dutch, because certain terminalogies are quite difficult.
Furthermore, I find it a real relief that Cowan [and Barbara O'Neil] mention certain actual causes, such as EMF, synthetic clothing, etc. Usually these disease makers are completely ignored in the mainstream. For example, naming EMF, as everyone will understand, is nowadays very sensitive as a true pathogen, because this is also a consequence of an overall digitalization of our living environment and because so much has been invested in it and is also seen as the holy grail by the current technocracy, people would rather that EMF remain buried as a pathogen.
The drug is Guaifenesin.
I don’t understand. Are you saying it will help with the pain of fibromyalgia? If so why?
It's a protocol developed by a UCLA physician named Dr. Paul St. Amand. http://www.fibromyalgiatreatment.com/
I have been taking Guaifenesin for 25 years.
http://www.fibromyalgiatreatment.com/the-guaifenesin-protocol.html
Oh really? I’ll check it out. Thank you! How much do you take per day?
1,200mg
What brand and where do you get it?
It needs to be pure Guaifenesin, not cough syrup. https://www.amazon.com/Guaifenesin-Capsules-750mg-100-Fillers/dp/B079C5SCSR
Thank you!!
U may b right..
I did well on that one for quite a long time, 5 years or more.
I completely disagree with this . Not sure what patients did doctor cowan speak with but when i went to my doctor with endless back pains , muskoskeletal pain and migraines. I did physiotherapy, psychotherapy and none if it helped. Its true that the cause can be psychosomatic this disease is not. After eliminating all causes of pain we landed in Fibromyalgia. We don’t just go to doctors self diagnosed. Also quoting Barbara neil? The pseudoscience practitioner? Really? None of her scientific theories have proven.
The evidence doesn’t align with this essay, either.
Try the Emotion Code by Dr. Bradley Nelson. It takes a little bit of practice and you must have a good connection with your intuition or with someone who does. I used it on myself and got rid of lifelong knee pain and pain in both shoulders. It is available on Amazon. Being close minded doesn't help.
Nice! Rocking it as always! I loved the part about the huge fines from the FDA - the price of doing business. And then those in government head over and work for industry, making millions. Oftentimes as do-nothing "consultants". https://doctorschierling.com/blog/yippy-eye-aye-ghost-writers-in-the-skyyyy. This also happens to be the story where I learned about how many biomedical studies are completely ghostwritten, by non-scientists using completely made up data.
I find this article quite infuriating. After extensive tests to rule out everything else I was given a diagnosis of "probably fibromyalgia" approx 10 years ago. I was told it was psychosomatic, all in my head, so not real pain. I was prodded for an emotional event that set it off, none could be found. I was offered pain killers and antidepressants. A total insult to my mental health and every GP visit since a prescription of antidepressants are dangled over me. I take minimal pain relief.
Don’t tell me there is no pain in the night while I’m sleeping when the pain wakes me regularly. Don’t tell me there is no pain when I can physically feel the heat in those pain points in my legs and my inflammatory markers are off the charts. Don’t tell me it’s all in my head when I walk down the stairs sideways in the morning; and don’t tell me you can’t hear the clicking sounds I make when doing that. You have to be a blind Freddy not to see me unpeel myself after sitting for a while, I need to stretch out my joints to stand straight. Articulate by nature and history it’s a running joke in my family about how I mix up words, they call it my “Fibromygina Brain”.
I’m not wedded to any disease narrative; I fight chronic pain daily and never know which or how many parts of my buttocks or legs are going to hurt, so I’m likely to just say “my body hurts”, what has that got to do with my tooth not hurting? My view is that Cowan has no idea what he is talking about with fibromyalgia; he has approached his exploration of the topic with a predetermined result in mind. Promoting his findings is just continuing the myth I deal with every day.
I think (my) Fibromyalgia is chemical in nature, if you have ever had shin splints then you begin to understand the type of pain that attacks my joints and frequently turns into bursitis and tendonitis.
This question is not about fibromyalgia but about chronic pain following an injury. Why don't pain relievers, by blocking the pain, allow you to break the pain pattern?
And as for disease labels, I don't believe in them. I was diagnosed chronic fatigue syndrome (and MCS and other things) for years and actually had mold illness. Detoxed from mold and fully recovered. Many people with CFIDS actually turn out to have lyme or mold illness. It's a diagnosis that just means "you have something but we don't know what it is." The problem is that we don't have good diagnostic tests for many of the things that ail us.
FYI:
Jan. 3, 2025
By: William Makis, MD
@MakisMedicine
NEW ARTICLE: IVERMECTIN and FIBROMYALGIA Testimonial - Five days into an unprecedented way of treating a severely debilitating disease. A little Christmas miracle
A patient came to me before Christmas with a very severe case of Fibromyalgia.
I suggested a special "trial"
Ivermectin 24mg once a day for 3-4 weeks.
Here are the first 5 days. I suggest reading the patient's entire testimonial but here is an excerpt:
"Dr. Makis, today I sat and cried. I think it's helping!!!!
Yesterday, I was able to go from 8 Tramadol to 5. Today, thus far, I've only taken two. We can't think of another day, in likely a decade, when I've only taken two Tramadol.
I also haven't used any Oxycodone (5mg) since I started this trial. I'm currently on day 5.
Day one, I immediately saw an improvement of the debilitating fatigue, but assumed it was placebo.
Day 2, the same thing happened.
By day 3, it happened again, but I realized it wasn't just the severe fatigue diminishing, it was a noticeable improvement in the also severe brain fog. It was like a haze was lifted from over my eyes.
It was then that I realized that the feeling of electricity coursing through my veins was also significantly improved-at least during the day.
It was still present at night, but again, not so badly that I had to resort to extra Tramadol or Oxy.
In fact, the most Tramadol I have taken since starting this was 7 and it's decreased each day.
As I write this, I'm crying again.
It's extremely difficult to believe this may actually help."
====
Some testimonials really do speak for themselves, and I share this one with you with tremendous joy.
Treating Fibromyalgia with Ivermectin 24mg once daily for 2-4 weeks.
Why am I sharing this “first 5 days testimonial”?
Because it may help someone who is suffering and feeling hopeless.
And because it’s incredibly, beautifully detailed.
I’m being attacked a great deal lately on Twitter or
@X
. Some of you may have seen it.
I suspect Alberta Health Services @AHS_Media has paid new people to attack me in the past week or two. Alberta taxpayer dollars at work, as usual.
It’s strange to say, but I genuinely believe there are many in our government and healthcare system who don’t want patients to get better. They want people to stay sick.
Alberta Premier @ABDanielleSmith has been very pro "Big Pharma" for her entire term in office (protecting contaminated COVID-19 Vaccines for example), which may be why doctors like myself are being treated so horribly and attacked so viciously in Alberta.
But the testimonials will keep coming…😃
The Alberta government may hate me but patients from around the world have my back. And I have theirs.
Corrupt politicians come and go.
But I'm here to make a difference in people's lives.
No one is going to stop me from doing that.
X article: https://x.com/MakisMedicine/status/187515639406154178
Substack article (subscription required): https://makisw.substack.com/p/ivermectin-and-fibromyalgia-testimonial?publication_id=1385328&post_id=154070595&isFreemail=true&r=d9uy3&triedRedirect=true
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IVERMECTIN and FIBROMYALGIA Testimonials - 20 Short Cases! (I couldn't find the X article)
May 20, 2025
William Makis, MD
@MakisMedicine
Substack article (subscription required): https://makisw.substack.com/p/ivermectin-and-fibromyalgia-testimonials?publication_id=1385328&post_id=163992771&isFreemail=true&r=d9uy3&triedRedirect=true
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Dr. Makis' contact info:
Substack: https://makismd.substack.com/
X: https://x.com/makismedicine
Email: info@makisw.com
Instagram: @wmakisMD
YouTube Channel: https://youtube.com/@Makisw
NO: Facebook/WhatsApp/Telegram/TikTok/WEBSITE
(SCAMMER WARNING!, fake accts/websites/emails/email addresses exist)
All pain has an emotional component, how can it not. The "Myalgias" came around to my familiarity in the 90s and was a additional component of Myofascial Pain Syndrome, we treated it the same way, with manual therapy. Kennedys back doc Janet Travel and the first man in space, David Simons, wrote the definitive text on the identification and treatment. Anyone suffering with this condition should find the 2 volumes online and study to empower yourself.
"MusculoSkeletal Amnesia", my concoction of over 35 years ago, contains the recipe to treat soft tissue weakness and discomfort. No, I dont diagnose but I do notice and help people that want help; Many dont want help as they have grown to own their pain, not shed it. Dont bother to look for this as its not important and I never wrote about it, I just used it to help others.
Opioids and other "elixirs" can be helpful especially if one needs to do physical stuff. Many dont share their treatment paths for fear of shaming( its real) and just try to get through the day and do their ADLs(activities of daily living). MEN technology and botanical medicine can also be helpful but allopathic docs wont know anything about these alternatives unfortunately.
Exercise and stretching are the strongest tools but smart bodywork is the key component......there is no substitute to human touch! But how does one exercise when your skin feels like it has broken glass under it and your wrapped in barbed wire? Smart bodywork is the path!!!! I know as I developed a plan to treat the "amnesia" since I have stuff.
It must work as I was attacked by the licensure board when applying and shared my methodology. This is the system we live under, but we persevere!